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@augustine777

I wasn’t experiencing any symptoms at all other than the bout of pancreatitis that put me in the hospital for scans (thank God) when they found the tumors. I had pancreatitis 15 years ago (I am 50), but after having my gall bladder out, I hadn’t had a recurrence.

They took about half of my pancreas, my spleen, and some lymph nodes. My glucose levels have been great, and there is no sign of diabetes. I have been on a low sugar, low fat diet. Low-sugar just to not feed any other tumors that might be growing (not sure how helpful that is), and low-fat to lower the digestive load on my little half-pancreas. 🙂 That has worked fine for me. I can’t eat a lot at each meal. It feels like my stomach is tiny, and if I eat too much I get quite a bit of pain. I have been eating more smaller meals throughout the day, and that has been working for me. Hope that helps.

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Replies to "I wasn’t experiencing any symptoms at all other than the bout of pancreatitis that put me..."

@augustine777

Many of us, myself included, had NETs that were found incidentally (during a test that was looking for something else). It sounds as if you have adjusted your eating habits so that you can be comfortable with a smaller pancreas.

You are fortunate that your glucose levels (blood sugar) have remained normal.

What type of follow up has been suggested to check on the status of the NETs?