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@hopeful33250

Hello @augustine777 and welcome to the NETs discussion on Mayo Clinic Connect. I appreciate you sharing your experience with @billyfeet. It is good to know what others have experienced.

If you don't mind sharing more, what symptoms were you experiencing that led to the NETs diagnosis? Also, what type of diet did you follow after your discharge from the hospital?

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Replies to "Hello @augustine777 and welcome to the NETs discussion on Mayo Clinic Connect. I appreciate you sharing..."

I wasn’t experiencing any symptoms at all other than the bout of pancreatitis that put me in the hospital for scans (thank God) when they found the tumors. I had pancreatitis 15 years ago (I am 50), but after having my gall bladder out, I hadn’t had a recurrence.

They took about half of my pancreas, my spleen, and some lymph nodes. My glucose levels have been great, and there is no sign of diabetes. I have been on a low sugar, low fat diet. Low-sugar just to not feed any other tumors that might be growing (not sure how helpful that is), and low-fat to lower the digestive load on my little half-pancreas. 🙂 That has worked fine for me. I can’t eat a lot at each meal. It feels like my stomach is tiny, and if I eat too much I get quite a bit of pain. I have been eating more smaller meals throughout the day, and that has been working for me. Hope that helps.