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Nerve damage and pain that isn’t neuropathy but feels like it.
Neuropathy | Last Active: May 18, 2023 | Replies (33)Comment receiving replies
Hello I am sorry to hear that.
I have had tingling, brning, electric shock, buslzzing sensatiin, pain, ... in my feet for more than a year. It started 2eeks after my covid booster shot.
5 months ago, it spread in my calf, face, tongue, ..., but it is consistent and severe in my feet.
I know I have foraminal stenosis in L5S1 (left mild, right moderate), but epidural injection did not help at all.
I did a lot of research and read about small fiber neuropathy (SFN) after covid vaccine.
Just recently I visited another neurologist, and he said 99% it is SFN. Now waiting for skin biopsy. Although he is almost sure SFN is behind my pains, I am still hoping it is not SFN, otherwise I don't know where my life ends up.
I have been taking Gabapantin for 2months, but it has not helped.
I keep you posted when I have the biopsy done.
Replies to "Hello I am sorry to hear that. I have had tingling, brning, electric shock, buslzzing sensatiin,..."
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You bring up a good point. My doctor is trying to diagnose uncommon autoimmune conditions. I have had things develop rapidly. Over two years I’ve deteriorated. I am beginning to think that because I have autoimmune conditions that the MRNA shots screwed up my immune system and revving it up to attack itself more then before. I happened to have a bad reaction to the last MRNA shot. My pulse shot up really high later that day. I did not have an obvious reaction within the allotted 15 minutes. I did not believe it would cause problems. My sister pled with me not to get the shots. I thought I’d die if I didn’t get it. So this makes me not want to live with all these issues. So If I don’t die from covid i will by complications.
A new development since 4/8/23. My pulse went from usual 80’s-90’s to 100’s at times. It dropped to low to mid 60’s. THis morning I woke up with a pulse of 110 went to sleep it was in mid 60’s. What the heck is causing this now? I called the cardiologist, he said its not bad come in after I’m back from vaca so I see him next week. It’s not normal. When I lay flat, I get SOB and as my pulse drops down to 59 one day I got it then too. I have to take blood pressure meds and one is specific for pulse I held back taking one one day the pulse was low 60’s and it dropped to 59 woke up with pulse of 110. I know anything over 100 is tachycardia. That isn’t good. To fluctuate from one to the other. I have to take the meds to prevent it from going into the 100s. I can’t take furosemide because sodium and another are lower. So that would help the edema in the feet and help relieve that miserable pain.
Have you tried Lidocaine ointment 5% On feet? I use it and applied it the other day to all over bottoms of feet. It was excruciating to apply it with a q tip. I was originally on Gabapentin but new neuro put me on Lyrica instead. Honestly, if it is helping and is curbing pain if even a little, without it I’m sure I’d be wheelchair bound.
New update. Neuro said she wants to wait until labs are back and mri, ct and possible s. Tap is back to diagnose. If it is SPS, she said ativan or Valium. I’m not going near ativan and I have no idea about Valium. We shall see.
Do you ever get swelling? That makes the pain worse in the feet.
I hope you get some relief soon.