All my doctors get frustrated with me because I don't want to try new meds. I've just had too many serious reactions from a number of meds. Sometimes they trigger long term issues. Sometimes my reactions aren't even listed as a possible side effect. My cardiologist once told me he almost reported my scary reaction to the pharmaceutical company. It was serious. Why didn't he report it? Did he not believe me? If he doesn't trust me then I don't trust him. That told me why the unusual reactions are not listed in warnings -- because no one reports them. He said he would ask the drug rep if my reaction was possible. It was possible because it's what happened. Asking the drug rep who makes his living selling the drug is like asking the fox if the hen house needs more security. I also resist surgical treatments for fear of complications. Bad experiences. I'm just always the unlikely exception. My oncologist said I wouldn't have the scary heart reaction to a cancer med, only 4% get it. I did. I told him of the scary reaction I was feeling. You're fine he says. Then he did an EKG as is protocol on this med and he had to eat crow and tell me I had the rare reaction that causes you to drop dead. He had to lower the dose. He said I wouldn't get a collapsed lung from a biospy, only 10% chance. I did. You won't get painful keloids scars from the mastectomy. I did. After another lung tumor ablation -- I think your post-op symptoms are normal. After a week of fatigue and breathing issues, xray showed I did have a partially collapsed lung -- again. The stories are endless from different specialists and conditions. My body just overreacts to everything. Afib is another side effect of one of my cancer drugs, but I don't want to be on meds after the last drug or have any surgical intervention. I believe meds will just lead to new problems.

I'm frustrated, but can also understand why my doctors get frustrated. I'm not ever a textbook case. Not every doctor likes a challenge. I'm sure many of you feel the same way -- always the exception to the rule. I go in, get a diagnosis (sometimes) and then I decline meds and procedures that may or may not work because I'm scared to try them. It seems I just want them to wave their magic wand and fix me -- that's safe. I get it, that's frustrating to a doctor. So, I usually end up not seeing various specialists anymore because we're at a standstill. Same situation with my neuropathy. Sometimes I'm just relieved when we have a diagnosis and then deal with it as best I can. Past that, I need a miracle. Best of luck to all of you in finding your perfect treatment for your pain. Can't wait to hear what it is!