Connect
← Return to Newly diagnosed and/or living with ascending aortic aneurysm…anxiety
Discussion
Newly diagnosed and/or living with ascending aortic aneurysm…anxiety
Aortic Aneurysms | Last Active: Aug 17 10:10am | Replies (89)Comment receiving replies
Thank you Mermaid1. Your reply was wonderful. The ID bracelet idea and ct with contrast and echocardiogram sound like a good plan. I’m hoping to get my first one very soon as I only know I have ann aneurysm but no details ( hence more anxiety since I feel some pressure and burning in my neck and back…) and don’t have an appt with a cardiologist that deals with the aorta yet. Are you being followed at the Mayo Clinic? I live in Hawaii and if I don’t think the care ( based on fact we only have 1 million folks in the state and this isn’t all that common) is cutting edge or at least highest standard of care, I will be flying out to Minnesota. My husband’s family lives 30 miles from Rochester. Thank you again… ordering bracelets ( and maybe a necklace!) and asking for the CT scan and echocardiogram every 6 months… 🌺Much Aloha 🌺
Replies to "Thank you Mermaid1. Your reply was wonderful. The ID bracelet idea and ct with contrast and..."
Luckily I am in a city with excellent medical and surgical care for aortic aneurysms and don't need to travel for care. It makes it easier for me to get checked every 6 months 😁.
A couple more things I remembered that you might find helpful.
My cardiac surgeon sent me for genetic testing to see if my aneurysm was inherited as it affects type of care and standard for when to do surgery.
You may want to keep up with the latest guidelines for care. There were new guidelines that came out last Fall that make 5cm the new recommendation for surgery. https://www.jacc.org/doi/10.1016/j.jacc.2022.10.001?_ga=2.203056277.584368302.1681477286-927612621.1681477286
Connect
I am taking Amlodipine Besylate 5 Mg and Atorvastatin 10 Mg Tablet. My blood pressure goal from my doctor is to keep it less than 130/80 mmHg. I had both a Transthoracic Echocardiography and a CTA chest with contrast. In 2022 prior to finding out, I went on four cruises that required lots of walking but it was after the last one I thought I pulled a chest muscle pulling luggage off the carousel (which I did). I am feeling chipper and praying you will get the answers. I decided to not let this health issue hold me back but like you, I needed answers and resources. I am sending positive thoughts your way.