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RSD/CRPS

Brain & Nervous System | Last Active: Sep 25 9:25pm | Replies (121)

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@acarolina

This is my first post here and I'm stunned at reading your comment. My daughter had a left side brachial plexus injury in March 2021 that turned into CRPS. It's been a hellish two year for us. We did the FIRST program at Cincinnati but her GI pain (where it seems to have shifted) was so bad she couldn't eat and became too unstable to continue. It was one of the worst days of my life.

It's continued another year and we can't go on like this. It looks like Mayo in Rochester is going to be the most likely option for her if they'll take us, and I'm anxious for a thousand reasons.

But we need to get her back to band. She should have been a drum major this year.

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Replies to "This is my first post here and I'm stunned at reading your comment. My daughter had..."

Hi, I hope things are a bit better for her. Did you ever go to Mayo Rochester?

My 14 y/o has CRPS right ankle/foot/leg. She was originally diagnosed in 2019, age 9. She responded to Scrambler with Dr. D'Amato in Bonita Springs twice, each one year apart but it did not work for her earlier this year.