Connect
← Return to PMR with normal blood markers
Discussion
Polymyalgia Rheumatica (PMR) | Last Active: Aug 14 12:30pm | Replies (116)
Comment receiving replies
Hi, I’m very active 56 yo diagnosed w PMR Nov 2022. My labs were always normal so it was a few months before I got a the diagnosis- & yes, suffering all the while. I’m currently on methotrexate (get some nausea & headache) & 5mg prednisone. I was hoping to get off the prednisone but am not able to yet. Nice to read about other people’s experiences on here.
Replies to "Hi, I’m very active 56 yo diagnosed w PMR Nov 2022. My labs were always normal..."
That is interesting and thanks for sharing your journey @robin1040. I couldn’t tolerate the methotrexate so trying to taper prednisone without it. I hope it works for you.
Connect
Hello @robin1040, Welcome to Connect. I think we all wanted to be done with prednisone as soon as possible when we were first diagnosed with PMR but each of us are different and tapering slowly is the way to get off with a better chance of not having to go back on it. My first time with PMR took 3-1/2 years to taper off. Second time took 1-1/2 years or so. I made lifestyle changes the second time around and ate healthier which helped quite a bit for me. You might find the following discussion helpful:
--- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/.
One thing I found helpful was keeping a daily log. Do you keep a daily log with your pain level when you wake up and your dosage of prednisone for the day?