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Initial consultation at a Mayo Clinic

Neuropathy | Last Active: Apr 20, 2023 | Replies (46)

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@swanson2023

Thank you all for sharing your stories about applying to Mayo Clinic.
I have tried too. See below.

Our Opportunity - Hope
Mayo Clinic seizing its opportunity to:
--- Provide leadership for our healthcare system.
--- Help everyone in the system think about the kind of healthcare system we should create for future generations and start changing what we have today.

There is a critical/urgent need for leadership and management of collaborative communication between providers in the healthcare system.
Check out:
- The percentage of physicians in US expressing professional burnout -- Is it 60%?
- The comments made on Mayo Connect - Neuropathy Discussion:
-- Hope - Healing Our Healthcare System for the People's Sake
-- Call for Mayo Clinic Leadership in Healthcare for Neuropathy
-- Collaborative communication between and care by healthcare providers

Applying to Mayo Clinic
Fist of this year, on 2 occasions, I reached out to Mayo Clinic.
I included -- "I need help. I find myself managing my care and multiple providers. Trying to help multiple providers collaborate in helping me prevent stroke and heart attack and overcoming peripheral neuropathy."

Mayo Clinic responded by:
1. Telling me to work with my local providers (who do not collaboratively communicate) - Not good,
2. Encouraging me to join Mayo Connect - Good.

My reason for reaching out to Mayo Clinic was the realization that my local providers (PC Physician, Neurologist, and Cardiologist) do not collaboratively communicate.
(Now I understand they may not be trained in and have time for authentic collaboration.)

Collaboratively communicate about my atherosclerosis (diagnosed 9/2022), the role of Statins in my peripheral neuropathy, and the harm (extreme fatigue) caused by introduction of a new blood pressure medication - Nebivolo.

Last November, I had to go to an emergency room because of extreme fatigue and numbness in my feet and legs.
The ER doctor told me to tell my doctor (I had to facilitate the communication) to stop the Nebivolo and use previous medication. I did, and my cardiologist changed my medication back to Licinopril.

The story continues, as I continually have to help providers communicate about my health.
A process that is not healthy for me.

I do see opportunity for significant improvement in the use of technology to help providers communicate collaboratively and effectively. Not be a bother to them.

Thank you all again!!

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Replies to "Thank you all for sharing your stories about applying to Mayo Clinic. I have tried too...."

Well said. I have been on Statins for 30 years and got this hideous disease about 4 years ago. Nobody has any answers and I mean nobody. Its extremely frustrating and I'm angry about it.
I have tried everything. I have a lot of pain in my feet and finally got medical Cannabis for sleeping and I use Tramadol for the pain during the day. Hard to even get Tramadol because doctors are afraid to prescribe it. No one seems to understand this or even seem to care. Shameful!