Connect
← Return to Undifferentiated Connective Tissue Disease
Discussion
Undifferentiated Connective Tissue Disease
Autoimmune Diseases | Last Active: Jul 26 3:41pm | Replies (34)Comment receiving replies
Thank you for your thoughtful post. I can soooooo relate to you! I just slept 10 1/2 hours and still feel tired! I under commit to things and wonder what is really wrong with me. I have elevated RF and IGM but low levels of white blood cells, red blood cells, C3,C4 complement serums, IGA. I have 2 M-spikes one IGM and one IGG but at low levels. I’ve taking medication for hypothyroidism and hydroxychloriquine. One salivary gland is irregular but the size has shrink but to normal. It’s not Sjogren’s because it is only on one side. One ear drain tube is dysfunctional. And my lungs have numerous nodules and “cut glass”……I exercise on a treadmill maxing out the incline setting for 30 minutes and lift weights every other day as well do intermittent fasting so my weight is fine and I eat organic only and vegan cook at home. Anyways, thanks for listening as I tread along and try not to obsess and focus on the present moment 😊
Replies to "Thank you for your thoughtful post. I can soooooo relate to you! I just slept 10..."
What do you mean one ear drain tube is abnormal? Is that a thing with this? My right ear always feels clogged and it’s like muted. I’ve had it checked but there’s nothing there!
Connect
@cherylmcg - what’s really wrong is that your immune system (this super complex and totally not fully understood thing) is dysregulated. And mine too!
It’s so much more complex than, say, hypothyroidism. Thyroid hormones low = add thyroid hormone = person usually feels much better.
If your immune system has developed antibodies that attack your body instead of not your own cells? There’s no straightforward treatment for that. Hydroxychloroquine is a good start as it has multiple actions that regulate immune function. You can’t just turn off the immune system - that could be way worse! Maybe my system actually is too slow clearing naturally dead cells and that’s what revs it up to attack mode? Maybe someone else’s system is revved too high to start with and starts increasing the rate of cell death? Those are both totally made up examples, but my point remains that: 1) you totally have a real thing 2) that real thing is super complex because it relates to the immune system and 3) it’s hard to know how to feel better while you are living it.
Major major kudos from me on exercising and eating well!! My puppy doggy is pretty successfully getting me moving most days, my diet of overly processed foods needs a ton of work though. Baby steps!