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What do I need to know about NETS?

Neuroendocrine Tumors (NETs) | Last Active: Sep 11, 2023 | Replies (43)
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@deloris

My husband was diagnosed March 16, 2023. He is receiving blood test and Sandostatin monthly. Is this a long term cancer as long as the injections keep working. What is the next step. Does this cancer have Stage 1, II, III?
Have you had any side effects with this cancer?

Thank you for your reply.

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Replies to "My husband was diagnosed March 16, 2023. He is receiving blood test and Sandostatin monthly. Is..."
Turkey | @tomrennie | Apr 12, 2023

Sorry to hear that Delores. I was diagnosed with stage four pancreatic cancer that spread to my liver. I have neuroendocrine tumors. I was diagnosed on 8/22/2022. I finish up my 7th CAPTEM chemo cycle tomorrow. My lastest CT scan showed the three large tumors on my pancreas have all shrunk to less than half of the size of when we started. The over 200 lesions on my liver have stabilized or shrunk in size. It is slowly working. NETS can't be cured, so I will be on some sort of chemo for the rest of my life. What kind of tumors are you folks dealing with?

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vinnie694 | @vinnie694 | Apr 15, 2023

I don’t know if I would call it a side effect of the cancer but I have carcinoid syndrome which is a symptom of the NET’s, it’s a facial flushing , no sweat, just intense heat..

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