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Lung Cancer EGFR Mutation Stage 4: What treatments did you have?

Lung Cancer | Last Active: Jun 25 3:47pm | Replies (52)
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@franciekid

My oncologist in Chicago is recommending it for 3 years after 4 chemo treatments. My cancer is Stage 2 and she said she is expecting a cure. We shall see. Many unknowns. Good luck to you. Sending a hug and encouragement. We have to take it one day at a time, I guess.

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Replies to "My oncologist in Chicago is recommending it for 3 years after 4 chemo treatments. My cancer..."
maryb50 | @maryb50 | Aug 9, 2023

Hi, I’m new to this site. I had lung vats surgery Oct of 2022. I have stage 2 lung cancer and the surgeon removed my right lower lobe and half of my right middle lobe resection. After the final path reports came back I have EGFR mutation.

EGFR p.L858R and several others.
I’m prescribed Tagrisso 80 mg daily since Nov-22. For 3 years .
I ve had all the usual side effects over these past 9 months I had a chest scan 3 months ago and everything was the same. Nothing new but in the last 3 months I have been getting headaches daily and experiencing some very painful back pain all the way from my waist to my shoulder all over and down my spine. Im slender and don’t have much cushion protecting my bones.
After my surgery the reports have shown some pleural effusion and after seeing my oncologist last week I’m scheduled for a MRI of the brain and a TTE test.
I also noticed that my CEA blood test came back 6.8 from 2.0 3 months ago. I’ve been experiencing weight loss, the nails splitting, queasy stomach, rashes etc. My Dr took me off the Tagrisso now for about 3 weeks to get these other tests done and see what the results are. My back is very painful and I’ve read that can also be a side effect of Tagrisso.
Has anyone experienced any of this?
Thank you for reading my long note!
Mary

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