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What do I need to know about NETS?

Neuroendocrine Tumors (NETs) | Last Active: Sep 11, 2023 | Replies (43)

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@vinnie694

I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the liver. I didn’t qualify for the clinical study due to previous prostate cancer diagnosis. I am currently on Lanreotide injections every 28 days to hopefully stop the spread, my third injection is tomorrow with a follow up MRI in June..

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Replies to "I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the..."

Me too. Im 55yr old man and had my 3rd injection 2 days ago for the same diagnosis. I get bloated and stomach pains about 10% of the time since i started Somatuline aka Lanreotide. Do you get this? I'm not sure if its a side effect of the treatment or from the NET in my SI. 🙏