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Has anyone chosen the Watch and Wait and regretted that choice?

Neuroendocrine Tumors (NETs) | Last Active: Feb 12 3:10pm | Replies (45)
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@lindaldotson

Thank you. On the lightheadedness- I've only been diagnosed with NETs for six months. I've experienced a couple of profound episodes of being lightheaded that required me to suspend my activity and wait for the episode to pass. Was this what you experienced?

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Replies to "Thank you. On the lightheadedness- I've only been diagnosed with NETs for six months. I've experienced..."
Teresa, Volunteer Mentor | @hopeful33250 | Apr 13, 2023

Hello @lindaldotson,

I find your comment about lightheadedness interesting. Did you doctor indicate that this could be related to the NETs diagnosis?

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catalinaharley752 | @catalinaharley752 | Feb 12 3:10pm

I also experience profuse sweating similar to hot flashes and weakness, I lay down or did still for about 1/2 hour and my wife will quickly give me something to eat, similar to what low sugar episodes mimic. I’ve had these episodes since 1971 and never could the Doctors figure it out till I went to a digestive Dr for what I thought was trapped gas and bouts of unannounced diarrhea. My liver is 75 % encased in lesions and pancreas has a few big tumors up to 2”. I’m still kicking it…

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