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DiscussionMeet others living with Head & Neck Cancer: Introduce yourself
Head & Neck Cancer | Last Active: Sep 21 5:27pm | Replies (538)Comment receiving replies
Replies to "Just starting my journey with tonsil cancer, had first round of chemo and 2 radiation so..."
I too had Squamous Cell cancer on a tonsil although at that time chemo was not part of the treatment, only surgery and radiation. Your roller coaster ride is just beginning.
You may want to consider a temporary feeding tube. I didn’t have that option so my diet became mostly liquids, Ensure, broth and jello for several weeks. Find what works. Taste will change or hopefully become nonexistent but this is usually temporary and usually begins recovery a few weeks after radiation ends.
If you wish, please contact me either through this feed or direct message me if you need to be pealed off the walls. It’s going to be a tough battle but you can do it. Tough times never last but tough people do. Any questions you have there are people here that can probably answer.
Have you had a consult with a speech therapist? I was given guidance and exercises to help maintain swallowing function during and after treatment. If you are not able to see one, I recommend searching online for exercises to help dysphagia and do them 2-3 times a day. They consist of tongue exercises and things like swallowing with your mouth closed and tongue on roof of mouth. If you can see s speech pathologist do so ASAP as you already started treatment. Hope this helps.