← Return to Dose anyone else feel like neuropathy is taking over their life?

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@californiazebra

What was your Raynaud's like? I thought my son and I had that for decades with the sudden swelling, burning, itching, redness and white polkadots on our palms and soles. Elevating hands and feet made it go away. But it was never connected to cold like Raynaud's says so I'm not sure exactly what caused it other than our HNPP. How did yours come on and how long was an episode? What did your hands look like during an attack? Just curious.

I also can't take narcotics. They do nothing for my pain, just cause side effects. I'm allergic to all OTC NSAIDS so there is nothing I can take for pain even after surgery or with my kidney stone. Now I have cancer. Scary, especially since neuropathy tends to enhance pain signals -- no off switch on those. I haven't tried any of the neuro pain meds like Lyrican or Gabapentin since my pain is fleeting, but I don't do well with meds in general. Sorry to hear so many people say those didn't work and/or had very undesirable side effects. I may need to try them one day if neuro pain becomes constant. Hope you all can find your magic solution.

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Replies to "What was your Raynaud's like? I thought my son and I had that for decades with..."

Raynaud’s is more pronounced in my feet but also in my hands on occasion. Swelling, burning, and the color variations (red,white,blue). At first, the doc said Covid Foot????? Then when blood work came back she said Raynaud’s. Not the Phenomenon, but the disease. The phenomenon is related to an autoimmune. The disease is on its own. Mine seems to get worse when my pain level from neuropathy is over the roof. Doc just said to wear gloves and socks. Episodes last around two-three weeks. Doc seems to think the Covid vaccine had something to do with Raynaud’s peaking through. Sorry to hear about your cancer diagnosis. I to, do not take any medication for pain. It’s tough but I do not like the side effects.