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Cervical myelopathy mistaken for neuropathy
Neuropathy | Last Active: Apr 30, 2023 | Replies (21)Comment receiving replies
Jennifer,
I may have asked you this before, but who did you see at Mayo. I also have cervical neuropathy,feeling off balance, neck pain, and lower back pain. I also was diagnosed with severe small fiber neuropathy. What concerns me is that many say you have surgery and problems can reoccur two or three years later. I have lower back pain now legs hurt, and end stage arthritis in knees. Nobody can figure out what is going on and very frustrated with doctors.
Replies to "Jennifer, I may have asked you this before, but who did you see at Mayo. I..."
This sounds like me but I’ve only been diagnosed with peripheral neuropathy.
Almost 80 years old: Was diagnosed with Lyme disease 20 years ago (after seeing a bazillion Drs)...and treated with antibiotics off and on for a few years and when I felt relapses. More recently have developed arthritis and pain in most bones including some cervical degeneration. My pain patterns are similar to yours and in early episodes was diagnosed with small fiber neuropathy. Also episodes of instability where I lose equilibrium and sort of keel over. Also bowels not moving regularly without help.
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@lewin I think your question is related to spine care and about my spine surgeon at Mayo, Rochester. My surgeon is Jeremy Fogelson who did a C5/C6 cervical fusion. There are many good surgeons at Mayo, and I selected him because of information I found through one of his medical papers because I had similar symptoms. I had been turned down locally by 5 surgeons who didn't understand my symptoms because my case was a bit unusual. He works with a neurologist in the spine center there, and he examined and tested me first and sent his results to Dr. Fogelson.