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Two weeks in, frightened by meds, PMR and COVID Booster Shot
Polymyalgia Rheumatica (PMR) | Last Active: Apr 22, 2023 | Replies (87)Comment receiving replies
I'm taking 5mg at 6am, 5 mg at noon and 10 mg at 6pm the last few days. A 20 in the early morning leaves me fainting with pain at 3am.
Dropping to 15 in two weeks, which I don't think is a good idea, but I added 400 mg Plaquenil 3 days ago as we had it on hand. The Facebook group has many people taking it as a steroid sparer. Familiar with it as I took it for 7 years with lupus.
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Yeah, dropping from 20 to 15 mg doesn't sound good. I've read many times that the maximum recommended reduction of prednisone once you've been on it more than a few weeks is 10%. I was on Plaquenil for a while but it didn't seem to do anything for me. For others I've read it really helps. It certainly sounds like splitting your pred dose is the way for you to go! If I remember correctly I think I had to split my dose until I got down to 8 or 7 mg. Guessing my metabolism was burning a single dose up too quickly. Best wishes to you on your journey!