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Meet others living with Head & Neck Cancer: Introduce yourself

Head & Neck Cancer | Last Active: Sep 21 5:27pm | Replies (538)
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@new1

Thanks for the reply. I
contacted Mayo Jacksonville 2 weeks ago.
As I suspected they would
not even consider seeing
me unless I have a cancer
diagnosis and then they
screen and cherry pick
who they see( even though
I have been seen there previously for something else).
In regards to your other comment I am not looking for or wanting anyone on this site to make any decisions about Dr's or
anything else for me.
I simply asked if anyone was willing to share names
If they wanted to.
Apparently, based on your
comments that is not
going to happen. I will admit I do not understand
what this site is for.

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Replies to "Thanks for the reply. I contacted Mayo Jacksonville 2 weeks ago. As I suspected they would..."
Colleen Young, Connect Director | @colleenyoung | Apr 11, 2023

Hi @new1, perhaps I can help. Mayo Clinic Connect is a place where you can connect with other people to talk about health issues, and give and get support. It sounds like you would like to know who you can see to confirm or rule out the possible diagnosis of oral cancer.

The best specialist to consult is an otolaryngologist, sometimes referred to as an ENT specialist or ear, nose and throat doctor. I might consider contacting Mayo Clinic again to confirm as cancer care at Mayo includes the latest diagnostic as well as treatment options. You may also consider Moffit Cancer Center or if travelling out of state is an option Mayo Clinic in Arizona or Minnesota or MD Anderson in Texas. All of these institutions have the top specialists.

Has your dentist or doctor suggested a referral to a specialist?

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Don Higgins, Volunteer Mentor | @dsh33782 | Apr 14, 2023

Hi @new1
I live in Pinellas Park FL and am being treated for esophageal cancer at Moffitt Cancer Center in Tampa which is about an hour away. My daughter Holly and her husband Chris were stationed in Jacksonville when he was in the Navy as a pilot. I'd be happy to answer questions about my experience with Moffitt and my treatment. I've had 28 days of radiation and chemo now and seem to be on the mend. Let me know if I can help?

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