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@bunnyboy

Thanks for sharing all your valuable info. My situation in not talking is right after seizures, slowly I come around, the Keppra is killing me, they have me on 750 twice a day, I'm going to advocate him putting me back on carbamazepine instead. I was taking Carb. with Gaba. only at night previous, even though they wanted me on twice a day. Either way, the morning and night dosage is what is destroying my home and work life. They don't have a treatment for seizures, their solution is just to keep you drugged all the time and sedated. Even so, I believe the Covid Vaccine, once it exits my body completely, seizures will stop. But the Doctors want you on the meds forever, so no way to ever tell if you need them! Thanks everyone for your input!

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Replies to "Thanks for sharing all your valuable info. My situation in not talking is right after seizures,..."

@bunnyboy Good Evening
Great to know you are starting a new neurologist! I believe I was in a similar situation in 2020 as yours today. I did not adapt to Vimpat, it was killing me and destroying my life. But my doctor at that time did not want to go back to Tegretol/Carbamazepine prescribed by a previous doctor. The dosage to him was too low, the drug was not keeping me seizure-free and there were more modern drugs available on the market. As he did not want to switch back, I switched him. It was the best thing to do in such a situation in my opinion.
I agree when you say that many doctors do not treat patients with epilepsy and above all human beings. Many just keep us drugged. But there are still good ones!! Do not lose your faith!! This is very well shown in the movie with Meryl Streep "First do no Harm", about the aggressive treatment her child receives when diagnosed with epilepsy. It is available on YouTube. Worth watching.
My doctor agrees to keep me on a drug in which I can have a certain life quality, though I still have some seizures. I do also prefer to have my 2 to 3 seizures per month (my seizures are focal) rather than to be again in the state I was in while taking Vimpat and other AEDs . Some have made me seizure-free but at a very high cost.
Wishing you all the best with this new doctor. Please give us news from you. Do not lose faith!!!
Santosha