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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
My husband of almost 50 years (omg, we are old, lol) was diagnosed with stage 4a (both lungs, nowhere else) in Sept., began treatment in Nov for NSCL adenocarcinoma with carboplatin, pemetrexed and keytruda. Those he received for 3 rounds. Then just the pemetrexed & keytruda. After an undiagnosed inflammation ( that was thought to be caused by keytruda) that did not respond to massive steroids and an 8 week hiatus from infusions he has declined physically in that his breathing is labored and his fatigue forces him to sleep up to 15 hours a day. Today, he begins back on chem & immunotherapy, has ordered an oxygen evaluation and there you have it.
Before diagnosis he was an active sailor, we traveled the world, rehabbed our home etc. We considered going to PHX where we lived at one time )and son #1 is still there) for treatment at Mayo. There’s also a Mayo clinic about 5-6 hours away from us currently. He receives treatment locally and Moffitt Cancer Hospital in Tampa is also monitoring his “progress”.
Replies to "My husband of almost 50 years (omg, we are old, lol) was diagnosed with stage 4a..."
I was diagnosed September 2022 with same as your husband, nsc, stage iv, only in lungs. Was in clinical trial all winter but the trial drug showed no positive effect. Currently am on same three drugs as your husband, third infusion tomorrow. Hopefully will get through this third and fourth infusion. After it’s supposed to be keytruda and pemetrexid on maintenance basis. I also was in good health before last year. My p c p kept treating me for pneumonia all last summer. I wish your husband better health and a good recovery.
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Hi @millie5737, It sounds like you and your husband have had some fabulous adventures! I'm glad that you were able to do that when everyone was feeling well.
I'm sorry to hear that he's struggling. Have there been any scans after the 8 week hiatus; is there tumor growth, or is the inflammation just not getting better? It can be so hard to know what the cause is, and then hard to know what to treat. What a circle of confusion we live in sometimes! It's never fun or easy. Wishing you both the best, Lisa