← Return to Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

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@aaroncush

It has definitely been an interesting discussion on not giving up, one that I am slowly losing as I trend towards idiopathic again. The right side of my body has been screwed up since I was six months old and had a massive stroke, meaning I depend on my left side. My probably idiopathic neuropathy is almost 100% on my left side only, meaning I don’t have faith in trusting my left side anymore. Without that trust what can I do but say no to any physical activity? Landscape photography (black and white) was my favorite hobby but I haven’t taken any pictures in two years (attached is one sample from Jordan Pond @ Acadia NP). An adult onset allergy to black pepper killed restaurants 8 years ago so that tosses out most non-physical social occasions too.

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Replies to "It has definitely been an interesting discussion on not giving up, one that I am slowly..."

That picture is so beautiful; peaceful and serene

Have any of us ever progressed from an initial diagnosis of idiopathic neuropathy to anything more specific? I ask because the day my neurologist told me I had idiopathic neuropathy, he gave me the impression that "idiopathic," or "unknown," was a placeholder diagnosis until further testing revealed more. It's been a half year since I was given my diagnosis (idiopathic), and I'm always wondering if, at some future follow-up appointment, my doctor will be able to give me a more specific diagnosis. ––Ray (@ray666)