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Who all has MAC and Alpha-1 Antitrypsin Deficiency?
MAC & Bronchiectasis | Last Active: Jun 16 7:32am | Replies (19)Comment receiving replies
@hammerheadham and @miloandlisa, I believe @jeannie55 and @discerning1 fall into this category of having both MAC and Alpha 1, too.
There are a few alpha-1 antitrypsin deficiency and lung conditions in the Lung Health and COPD support groups too:
– Alpha-1 Antitrypsin Deficiency – just been diagnosed https://connect.mayoclinic.org/discussion/alpha-1-antitrypsin-deficiency-just-been-diagnosed/
- COPD: Is it genetic? alpha-1 antitrypsin deficiency https://connect.mayoclinic.org/discussion/copd-is-it-genetic/
How does your management of MAC change knowing that you have alpha-1 antitrypsin deficiency?
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Hi Colleen, I am trying to find another mentor that I saw when I first found this site. I do not remember her name but she said in her post something about time to be looking into a lung transplant. I would like to more of her story. Do you know who I am talking about? By the way thanks for your help.