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Had Shingles shot and now have PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jan 17 3:40am | Replies (78)
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@barbaraphyllis

Has anyone been diagnosed with PMR after the shingles vaccine?

I had my initial dose of the Zoster vaccine in January 2023. Shortly afterwards l noticed pain in my right inner groin/thigh area. Then the pain returned in the Deltoid muscle where I received the injection in my left arm. It spread to my shoulder back and neck region on both arms and the back of my thighs. Most movements involved in daily living activities are involved.

The diagnosis of PMR was confirmed following blood work and I have been under the care of a rheumatologist. He hoped my symptoms would go into remission but after 6 weeks of NSAI I started on Prednisone of 15mg tapering by 2.5 mg every 14 days. In 3 days I’ll start 7.5mg. The pain and stiffness are manageable but always present being worse overnight and several hours after taking Prednisone with breakfast.

I’m so relieved to find a PMR support group.

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Replies to "Has anyone been diagnosed with PMR after the shingles vaccine? I had my initial dose of..."
John, Volunteer Mentor | @johnbishop | Apr 9, 2023

Welcome @barbaraphyllis, It is a comfort to find you are not alone. So glad that you have found Connect. You will notice that we moved your post to an existing discussion on the same topic here so that you can meet other members like @pmr2016, @karinaph, @grandmar and others.
--- Had Shingles shot and now have PMR: https://connect.mayoclinic.org/discussion/had-shingles-shot-and-now-have-pmr/.

My PMR is currently in remission but I've since had both the Shingles vaccine and the Zoster vaccine and fortunately with no adverse side effects. Tapering can be a little tricky and I was fortunate to have a rheumatologist who believed slow tapering and listening to your body wins the race. You might find the following discussion helpful if you are still having pain while you are tapering.
--- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/.

My rheumatologist had me keep a daily log with the amount of pain I felt when I first got up along with the prednisone dosage for that day. If my pain was greater than a 2 to 3 on my scale of 0 to 10, I didn't taper down if it was time to taper on my schedule or I bumped my dose up by 1/2 of my previous taper so that I didn't go back to the previous dose.

Do you keep a daily log for your pain and the amount of prednisone?

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