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Anyone else told their medical system has no neuro willing to treat?
Post-COVID Recovery & COVID-19 | Last Active: Jun 22, 2023 | Replies (34)Comment receiving replies
I have also developed these tingling graduating to internal tremors and actual shaking, starts in early hours, comes in waves, and wakes me and now accompanied by overall body weakness and like a neurological storm that affects body and brain. It’s causing debilitation and torment including emotional. NOTHING I’ve experienced in my life vaguely resembles.
Been to my Dr, the ER, clear CT scan, and one zoom visit to neurologist this week who has ordered MRI in 3 weeks and put me on a trial of anti seizure meds, momentarily it helped the physical but everything is back and escalating and I’m unable to cope.
This was a relatively sudden onset.
If I can’t find relief I simply can’t function in this body.
I am 68 and had a good and happy life before this. As of now my life as I knew it is gone.
Does anyone think that Mayo could help?
Replies to "I have also developed these tingling graduating to internal tremors and actual shaking, starts in early..."
Hi @lisadunlap. Please dont give up. As you are able to read more posts and glean helpful insight and resources, you will realize there are things improving. I am 60, little over year post covid, and gratefully not as bad as last year which you seem to be experiencing as so many of us. It seems “true” rest and care for our bodies needed whether few months or years depending on our individual bodies. Just as this year seemed impossible at the beginning, I am able to maneuver now and know I can make it thru the next year to reap the benefit of spending another 40 years with loved ones💖 Hope this helped and healing to everyone 🌈
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Everyone on this thread…I had muscle spasms, tremors, fatigue and many other symptoms. I AM HEALING BUT it’s all out of pocket expense so go sell some belongings if you need to and go find the following people to help…FUNCTIONAL Nuerologist NOT a regular Nuerologist!
FUNCTIONAL or Holistic Nutritionist to heal gut and brain health. I am on a strict diet specific to ME…you have to do testing to find out what’s wrong with you b/c you have long Covid b/c you had underlying unresolved issues before you got Covid! My functional docs have done exstensive stool, saliva, hair, blood & genetic testing on me. I also do hyperbaric oxygen chamber and infared sauna. Go in Instagram or YouTube and look up the work of Brain & Spine-Dr. Harrison Salisbury (office located in West Jordan, Utah) He is amazing and will do a free 15 minute call with you and also will treat you over ZOOM or help you find a Functional Nuerologist in your area!