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Anyone else told their medical system has no neuro willing to treat?

Post-COVID Recovery & COVID-19 | Last Active: Jun 22, 2023 | Replies (34)
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@jforth

I also suffered from the same internal tingling and vibrations, primarily at night, which seemed to be related to the chronic and widespread pain I had developed from long Covid, as the tingling and vibrating sensations always seemed to be focused in the areas where I was experiencing pain.
It was a rheumatologist I saw (the second one) who finally diagnosed me with long Covid, and he put me on a three-week course of prednisone. That, along with following a strict, low-inflammatory diet is what seems to have fixed me.

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Replies to "I also suffered from the same internal tingling and vibrations, primarily at night, which seemed to..."
lisadunlap | @lisadunlap | Apr 9, 2023

I have also developed these tingling graduating to internal tremors and actual shaking, starts in early hours, comes in waves, and wakes me and now accompanied by overall body weakness and like a neurological storm that affects body and brain. It’s causing debilitation and torment including emotional. NOTHING I’ve experienced in my life vaguely resembles.

Been to my Dr, the ER, clear CT scan, and one zoom visit to neurologist this week who has ordered MRI in 3 weeks and put me on a trial of anti seizure meds, momentarily it helped the physical but everything is back and escalating and I’m unable to cope.
This was a relatively sudden onset.

If I can’t find relief I simply can’t function in this body.
I am 68 and had a good and happy life before this. As of now my life as I knew it is gone.
Does anyone think that Mayo could help?

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