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Just found out I have mycobacterium abscessus!

MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)

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@healthybon

Are the antibiotics agreeing with you or do you have side effects

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Replies to "Are the antibiotics agreeing with you or do you have side effects"

Bon, I haven't taken antibiotics in over 2 years for MAC/NTM. I did take the "big 3" Azithromycin, Ethambutol, and Rifampin for about 18 months and also inhaled Amikacin (Arikayce) the last 3 months of that time frame. I stopped because of tinnitis in my left ear. My most recent sputum sample 4 months ago was negative for MAC/NTM but positive for Hemophilus influenzae which was cleared up completely with a 10 day treatment of Augmentin. I have very little cough these days but continue with nebbing 7% saline and using the Aerobika device. Good luck to you at NJH, they are the best. Bill