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Does anyone have a glomus brain tumor (paraganglioma)?

Brain Tumor | Last Active: Apr 17, 2023 | Replies (18)
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@leo23

My wife had visual disturbance so we brought her to ED to seek medical attention and she was diagnosed with rare disease they called Paraganglioma . She had a history of stroke 20 yrs ago and had a stent placed @ St Joe’s 2002.So I don’t know where I have to begin with as far as who we have to see first?

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Replies to "My wife had visual disturbance so we brought her to ED to seek medical attention and..."
Colleen Young, Connect Director | @colleenyoung | Apr 9, 2023

Welcome @leo23. I moved your message to this existing discussion so that you can connect easily with other members like @jls77 @kfs @mrruttinger1 and @saylor479 who have experience with paragamgliomas. Cick this link to see previous posts:
- Does anyone have a glomus brain tumor (paraganglioma)? https://connect.mayoclinic.org/discussion/glomus-brain-tumors-1/

Paragamgliomas are neuroendocrine related. Have you received a referral to a onco-neurologist or an expert specializing in neuroendocrine tumors?

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