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Last Covid Booster in August 2022 I’ve had severe pain. Probable PMR

Polymyalgia Rheumatica (PMR) | Last Active: Apr 28, 2023 | Replies (18)
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@alexmemphis

When my Dr. suspected PMR, he said that if I took Prednisone and was better in 48 hours, that it would confirm the PMR diagnosis. I could tell an improvement on day 1 of Prednisone and was almost pain free by day 3 and at about 1 week, I felt like a new person. Never had to have any pain medication except NSAID that Dr. prescribed. I was on Prednisone for over a year. My understanding is that PMR cases can last different lengths of time, so the Prednisone taper is different for everyone.

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Replies to "When my Dr. suspected PMR, he said that if I took Prednisone and was better in..."
nativeoregirl | @nativeoregirl | Apr 9, 2023

Thank you for sharing. I felt better right as well. However
The first Rheumatologist said, my PCP make a mistake because everyone feels better on Prednisone. I knew I needed another opinion do waited the 7 -8 months to see Rheumatologist #2. She stated the fact I was off Prednisone 6 weeks and already had same more severe symptoms again I would need full treatment most likely 2 years of Prednisone and maybe lifetime. I tolerate it we’ll so I am grateful to be on it again and practically back to normal 💪🔜✅🙏

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nativeoregirl | @nativeoregirl | Apr 9, 2023

Happy you got results! Doctors tell us we need Prednisone for PMR and when it works they immediately want to decrease, then when it comes back full force they still are reluctant to state more than probable as there are no actual tests to confirm. What do others in this group communicate to to close family and friends about this condition?
And to Doctors who cannot commit to a diagnosis, but state it’s probable cause. It feels like a contradiction, as they also steer me away from questions about Covid Booster or shots as the cause. Especially in older adults. I am not sure what to say the next time I hear this ! It’s invalidating to have severe Symptoms of PMR in shoulders, hands, arms. Then of course , they tell me that there are no actual tests to confirm but I think you need to go back on the Prednisone to treat this PMR, and your previous Dr. took you off too soon! It’s hard to explain to others so they understand too what I am going through. Any advice of what you might have experienced and how you verbalized my situation to others? Appreciate any feedback.

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