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DiscussionLast Covid Booster in August 2022 I’ve had severe pain. Probable PMR
Polymyalgia Rheumatica (PMR) | Last Active: Apr 28, 2023 | Replies (18)Comment receiving replies
Replies to "When my Dr. suspected PMR, he said that if I took Prednisone and was better in..."
Happy you got results! Doctors tell us we need Prednisone for PMR and when it works they immediately want to decrease, then when it comes back full force they still are reluctant to state more than probable as there are no actual tests to confirm. What do others in this group communicate to to close family and friends about this condition?
And to Doctors who cannot commit to a diagnosis, but state it’s probable cause. It feels like a contradiction, as they also steer me away from questions about Covid Booster or shots as the cause. Especially in older adults. I am not sure what to say the next time I hear this ! It’s invalidating to have severe Symptoms of PMR in shoulders, hands, arms. Then of course , they tell me that there are no actual tests to confirm but I think you need to go back on the Prednisone to treat this PMR, and your previous Dr. took you off too soon! It’s hard to explain to others so they understand too what I am going through. Any advice of what you might have experienced and how you verbalized my situation to others? Appreciate any feedback.
Thank you for sharing. I felt better right as well. However
The first Rheumatologist said, my PCP make a mistake because everyone feels better on Prednisone. I knew I needed another opinion do waited the 7 -8 months to see Rheumatologist #2. She stated the fact I was off Prednisone 6 weeks and already had same more severe symptoms again I would need full treatment most likely 2 years of Prednisone and maybe lifetime. I tolerate it we’ll so I am grateful to be on it again and practically back to normal 💪🔜✅🙏