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Constant Coughing

MAC & Bronchiectasis | Last Active: Apr 26, 2023 | Replies (15)

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@californiazebra

Hi @sadair20 -- I can see why you are frustrated and worn out. I coughed constantly for 30 years. In 2008 a CT identified 50+ nodules in both lungs -- slowly growing. A mystery, but most doctors guessed it was something benign. Finally, in 2020 I had a lung biopsy and was diagnosed with DIPNECH (very rare -- only 200 documented cases) and typical carcinoids (rare slow growing lung cancer - only 1-2% of lung cancer cases). People with DIPNECH usually have a long history of unexplained coughing and shortness of breath as I did. I also coughed up clear mucous all day long. Everyone knew me as a chronic cougher. Inhalers made it worse. I was very sensitive to scented products -- big trigger. Almost everyone wears something scented, plus candles, air fresheners, etc. I felt allergic to people and crowds. I've been taking octreotide injections for two years and I have minimal coughing since about 2-3 months after starting treatment. It has been life changing!!!

I had to look up MAC. From what I read, it's an infection and is treated with long term antibiotics. Although we have different disorders, I can certainly empathize with you. My hope for you is that the antibiotic treatment will greatly improve your coughing -- hopefully sooner rather than later. My heart goes out to you.

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Replies to "Hi @sadair20 -- I can see why you are frustrated and worn out. I coughed constantly..."

@californiazebra Thanks for your reply. I am so happy to hear your octreotide injections are doing the trick for you! That's amazing. I can't wait to see my new ID Dr. to get some answers and some kind of treatment. Also, learning about airway clearance techniques online shouldn't be what a person has to do . I'm going to let my pulmonologist know how disappointed I am with his ability to educate me about anything! (another giant frustration!)