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High grade 2 and 3 neuroendocrine
Neuroendocrine Tumors (NETs) | Last Active: Apr 15, 2023 | Replies (27)Comment receiving replies
@ssf
Hello Sean,
I appreciate the update regarding the trial study. I sense that you are disappointed not to be included in the COMPOSE study. Was the determination based on the skull base meningioma?
I am glad to hear that you are a candidate for the PRRT and CAPTEM. I look forward to hearing from you again.
Will you provide an update when you know which med you will be taking?
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I was rejected because of the skull base meningioma. I was hoping to get on the trial program, it's being studied for those of us with grade 2 and 3 neuroendocrine. In my case, I would have been randomized for either the trial drug which is delivered in six doses, or CAPTEM. I'll stay in touch Im certain my Dr will be prescribing CAPTEM here shortly.