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@bouregard3

Hi, I am so glad to have found this support group! I was diagnosed with MCTD after a lengthy bout with Covid in January 2022. My PCP has been a godsend, when 4 months after Covid I was still having weird pain he ran an ANA panel and it showed high RNP along with scheloderma crest syndrome. So far it’s affecting my mobility. On bad days walking can be difficult, I use trekking poles instead of a cane because they keep me upright. I’m currently taking meloxicam for inflammation along with b12, folate, vitaminD. I can’t take steroids because they negatively affect my heart. Overall I’m happy to be able to move, I did retire from teaching as I was having a rough time keeping up with my preschoolers. It’s good to know I’m not alone!

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Replies to "Hi, I am so glad to have found this support group! I was diagnosed with MCTD..."

Welcome @bouregard3, I'm tagging fellow members like @terrirussell @krcc @marye2 @sueg42 @renm @guthealth @1corinthians926 @irish283 @1950 @jessf who have experience with MCTD (mixed connective tissue disease).

I'm sorry to hear that your diagnosis moved forward your retirement plans. Trekking poles are a good idea for stability when moving. Do you use them in the house too or only outdoors?