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DiscussionHigh grade 2 and 3 neuroendocrine
Neuroendocrine Tumors (NETs) | Last Active: Apr 15, 2023 | Replies (27)Comment receiving replies
Replies to "I don't know if one is better than the other, my Oncologist is recommending either I..."
Well, let me know if there is anything that I can do to help. I just did some homework and your cancer is more aggressive than mine. i knew that I had some time. I had been sick for about 3 years before someone tested for cancer. I am stage 4 pancreas to liver. Finally got that confirmed with Mayo Phoenix on 8/22/22. I started CAPTEM about a week later. The side effects are pretty typical: aches, pains, nausea, vomiting, diarrhea, really itchy, and just feeling sick. I take CAP pills from day 1 - 10 and both the CAP and TEM pills on days 11 - 15, I have two weeks off, then start again. I am currently on my 7th cycle. The first two cycles were hard. i was sick most of the time. But, through some trial and error with my wife and care team, we have come up with a cocktail that is greatly limiting the side effects. For example, the chemo hasn't made me vomit in months. I have an appetite back and have gained some weight. The main tumor no long blocks my portal vein and smv. i feel so much better. I am told that my cancer is never going away and is inoperable. So, I wanted to find something that I could take for the long haul. The Dr. only presented CAPTEM. He was pretty confident it would work. I am so glad that he was right. Please let me know, if there is anything else that I can do to help Sean. OK?
I am a grade 2.