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High grade 2 and 3 neuroendocrine

Neuroendocrine Tumors (NETs) | Last Active: Apr 15, 2023 | Replies (27)
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@ssf

Unfortunately, I was not accepted to the trial study (COMPOSE). In addition to neuroendocrine cancer in my liver I also have a skull base meningioma, the benign mass is not uncommon for those of us with neuroendocrine cancer according to my NET specialist. Looking at PRRT and CAPTEM. In the meantime, I am cramming as much fun as I can into whatever time I have left.

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Replies to "Unfortunately, I was not accepted to the trial study (COMPOSE). In addition to neuroendocrine cancer in..."
Teresa, Volunteer Mentor | @hopeful33250 | Apr 8, 2023

@ssf
Hello Sean,

I appreciate the update regarding the trial study. I sense that you are disappointed not to be included in the COMPOSE study. Was the determination based on the skull base meningioma?

I am glad to hear that you are a candidate for the PRRT and CAPTEM. I look forward to hearing from you again.

Will you provide an update when you know which med you will be taking?

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