Hello, new to this board, thank you for all the information. Doctors scoff at this but my seizures started after my first Covid Vaccine, it has been a nightmare. I’ve had 2 Covid Moderna Vaccine shots, and 1 booster, within 5 to 6 days of each shot I had a severe seizure. I have never had a seizure in my life prior to the Covid Vaccine. At first my Doctor and Neurologist scoffed at a connection, but finally my Doctor (a wonderful man) said he would not rule it out and felt there might be a connection. Originally, they prescribed Gabapentin and Carbamazepine. At work, my memory was diminished, along with balance issues, etc. It was a nightmare. Because my seizures were nocturnal only I took the Gabapentin and Carbamazepine in the evenings before sleep. My seizures were controlled but still returned at the first week of every month for 2 years, bizarre, some kind of a biorhythm issue. Because I was so weary of memory issues, not remembering people at work who I knew well, and a myriad of other new maladies, I decided to stop the Carbamazepine (as the half life was 36 hours). I increased the Gabapentin (also an anti-seizure) as the half-life was 6 hours, this way I felt I could be free of medication during the day. Either way, after a week I stopped the Carbamazepine completely, within 5-days I had a massive seizure attack, 7 in succession. My husband who has always stood by me with my nocturnal seizures, was horrified. The next morning, he called ER, they said ‘get him in here’. I was there for 7 hours. I have now been prescribed (Keppra, 750 MG, ER, morning and night) with continued use of Gabapentin. I have an appointment with a new Neurologist in a week, my previous one has left the system. This all said, the Keppra makes me feel weird, I have taken 2 weeks off work (first time off in 5 years). I have had a stomach ulcer in my past, completely went away and has not been an issue. Guess what? It has slowly and now aggressively returned. I feel aggravated by the Keppra tablet sitting in my stomach each night. Just wanted to share my issues, and certainly appreciate reading what others are experiencing. Thank you!
Keep on the Keppra but only the name brand not the generic…..mine are 250mg and I cut them in half…I take half at 8am, 12noon, and then 4pm….each time 1/2 tablet……and yes, my neuro doctor calls me a “non-compliant patient”…….(I don’t care)…..generic are stuffed with other things and may have 250mg in one tablet and then next time 100 mg then could be 80mg in the next tablet, etc. (Deception of the drug companies). Yes keppra name brand (the real drug) is more expensive, but to me it is worth it……I had a seizure when I was 12yrs….diagnosed as my body changing…..this time May, 2022….doctors nurses etc…..said seizures are a “mystery”. I had covid in August, 2021 (4 weeks) then had a night seizure in November, 2021……then in May 2022…..in the afternoon….I did some research myself and I think it was a grand mall seizure…doctor agreed with me……my side affects with keppra, the way I take it, my only side affect is thots of suicide…..I do exercise everyday and try to eliminate sugars, fats, and gluten…..try to eat lots of fruits vegetables and nuts and grains…..I DiD NOT get the deceitful, deceptive Covid shot…..no booster deception shot either….