Living with metastic prostate cancer: Any positive stories to share?
Diagnosed with metastic prostrate cancer Nov17,2022, the cancer had already spread to my pelvic bone, lymph nodes , thoracic spine and throughout my bones fracturing 11 ribs, and to top it off 3 tumors in my head 1 of them behind my right eye causing vision problems. I started chemo Nov 28 ish , I’m on casodex and get the Lupron injection! My symptoms were back pain and I had seen multiple doctors through middle summer/fall! These doctors had me on physical therapy , accupuncture, 2 specialist stated I needed surgery on my back, they filled me with pain meds..not one doctor did series of blood test! Only test was an X-ray! My wife took me to mercy hospital Nov 11 in Buffalo because I was in so much pain and could barely walk. Within 4 hours in the ER the doctor told us they were quite sure I had cancer and would need to admit me run a lot of tests along with getting me healthy enough to go home.Sure shit I was admitted for 13 days,, then the day after my first chemo I ended up back in the hospital for 7 more days, I have had so many blood transfusion due to my counts being so low, a Foley catheter was put in me as well because I couldn’t urinate! I still have my catheter in and am doing my chemo! Does anyone have anything positive they can share with similarity!!! I am having my wife write this due to my vision
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I am on Enzalutamide pills and Zolodex injections Look into this Its working
I am 63. I was diagnosed with stage 4 in 2018. I had surgery, chemo, radiation, and Lupron. I made 4 yrs. cancer free. However, the beast just returned. I am reacting to your post because I am surprised that you have not been scheduled for surgery or chemo. Am i reading that correctly? You are just taking meds?
That's correct. Just the meds at this point. I am happy my doc is avoiding the surgery. I'm currently being treated at Phelps Hospital in Tarrytown NY but I have a meeting with a doc at Sloan Kettering in Westchester to explore a different treatments that I heard about from about one of our PC "brothers". https://www.mskcc.org/cancer-care/patient-education/high-dose-rate-brachytherapy-treatment-prostate
This is the most will written piece I've seen since I was diagnosed with Stage 4 PC in January 2023. Your document should be utilized by doctors and hospitals! They should be handing it out to patients as soon as they are diagnosed with any cancer! When I share your writings with other people or on other forums, I'll be giving you credit. Nicely done! Henry5168@live.com
I'm am 64 and was diagnosed in January. PSA was over 200. I was put on Casodex for 2 months and started Abiretarone, Prednisone and given 6 month Lupron shot. My PSA is now under 4 and I feel good. Will be starting radiation next week - 20 sessions. Stay positive. It's a long haul. Do your own research and you can live a long productive life.
I haven't heard of Casodex before. So many different treatments! I do a lot of research and I do plan on living a long, fun life. I'm retiring at the end of June at age 55. That was my plan from 30 years ago. I have lots off things I want to do and I really have a very different perspective about life since I was diagnosed (and also learned that I wouldn't be dead in a few months!). It's like I was given a new focus. Cheers, my PC brothers!
Likewise. Stay positive and enjoy every day. Also check into natural remedy supplements to traditional medicine. Trials have shown that certain mushrooms have shown to be very effective.
OMG! Your story is so sad & difficult to fathom! So, do I understand correctly, the docs you saw last summer never ran a PSA level on you? Have you ever had a PSA done? And, if so when?
Hello All,
My 71 y/o husband has metastatic PC. After pills, chemo, radiation we're now waiting for health fund to approve enzalutamide his oncologist prescribed. Hopefully this will give him some respite!! I find it very upsetting that no professional really "enlightens" one about the beasty long term side effects of chemo or radiation and that not every pain and ache means that mets are spreading... as obviously every patient is terrified this might be the case.
My husband was complaining about back pain and bowel issues and has been put on fentanyl which has also horrid side effects and even causes several of the pains and aches it's supposed to help with.
He's having a lower back/spine/waist ct this Thursday. The bowel marker test came back negative Thank God!
Can anyone here relate / comment please?? Wishing you all well being and peace of mind. Thank you.
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