A question, do you know how to find the self catherize forum on here? I used the word and couldn't find anything. Thanks Kathy

I’d make another appointment with this doctor asap and take a VERY long list of questions to ask her. Prescribing self catheterization without doing a simple cystoscopy first seems odd to me. A CT Urogram ASAP seems more appropriate to me for someone in such pain. (Note: I am not in the medical field. I just have experience as a urology/kidney patient and have VERY good and thorough urologists and nephrologists whom I trust completely with my healthcare.) Also make that appointment with a nephrologist. Getting answers and a definite diagnosis is your full time job now. I know it’s overwhelming and stressful (been there) but it is a relief when you get an accurate diagnosis and appropriate treatment plan. Keep us updated……

I’m fairly certain that catheterization should not cause bleeding.
I have had a cystoscope. It was after my pancreas transplant. The pancreas was initially hooked to my bladder (to drain the enzymes there) to collect and measure them for the purpose of monitoring for rejection. However these enzymes are like what is found in drain cleaner! My bladder did NOT like them and I started passing blood clots in my urine. I ended up hospitalized and one of the tests was a cystoscope to determine what was going on in the bladder. This story is different from yours but my point is that a cystoscope could provide some good information towards finding a solution.