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Diagnosed with Meningioma

Brain Tumor | Last Active: Apr 8, 2023 | Replies (50)

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@bill1980

In 2016, I was hospitalized for excruciating pain in my head. After undergoing an MRI scan, I received the devastating news that I had a brain tumor. Unfortunately, doctors were unable to determine if it was cancerous and the location of the tumor made a biopsy too risky. Despite the daunting prognosis, I chose not to undergo the biopsy due to the high risk of paralysis or blindness.

Although the doctors were initially unsure if I would make it out of the hospital, I eventually did. However, I've continued to experience deteriorating health since then, and today I'm essentially just surviving. Despite the challenges, I'm grateful to have discovered a community of individuals who are facing similar medical struggles.

Currently, I'm losing mobility on my left side, which is particularly tough since I work as a bartender and require the use of both hands. I feel lost and unsure of where to go from here. Nonetheless, I'm thankful for each day that God gives me and will continue to push forward.

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Replies to "In 2016, I was hospitalized for excruciating pain in my head. After undergoing an MRI scan,..."

I am so sorry you are going through this.
I am assuming you went to the Mayo Clinic since you are on this blog. I also went there after a brain tumor diagnosed. They were wonderful. Do you follow up with brain scans to see the status of your tumor?
I had Gamma knife and surgery in 2019. I also have increased
mobility issues on my left side which effects my hand and walking. I have started seeing a motion specialist (who knew there was such a thing) in my city who has helped me with medication and physical and occupational therapy . Please know that you are in my prayers.
God will take of you.

I am so sorry that you are having all these issues. I had Gamma surgery in 2019 and so far, things are good. Did you ask the doctors if you could have Gamma surgery? The surgery uses lasers and it stopped my meningioma from growing. I have an MRI every other year to monitor it.
I will pray for you .