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Living with a trach (tracheostomy), need advice.

Head & Neck Cancer | Last Active: Apr 7, 2023 | Replies (42)

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@neetneet

Greetings Jimthomasint: Thank you for your comment. What did you find challenging about the CPAP machine. My husband had one which we used constantly but later stopped using. I want him to be able to get back to being involved. He has not seen friends or talked to people (he cannot with the Trach but he can talk). He needs extensive PD for an old basketball injury of his right knee. The knee is painful and sensitive to the touch. We cannot really address this issue because we are working on the Trach issue. They do give him PT and OT once a week which will not really bring about any change. They are working on balance which is the first step. In the hospital they did have him stand but he could not put pressure on the leg with the bad knee. At home he used an up-walker for mobility--it was a great help. He has not stood up at his present location but has sat up in a special chair and also along side of the bed to do some balance exercises. I am a routine person so I am in the process of getting rid of years of clutter and preparing for next steps. Thank you for your post. We love the beach also. The sounds of the waves flapping is so refreshing and relaxing. I like your finishing point-"back to being active." That is what I want for my husband of 55 years. Our anniversary is coming up on April 13. Thanks again!

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Replies to "Greetings Jimthomasint: Thank you for your comment. What did you find challenging about the CPAP machine...."

My Cpap comment was relative. You gain 1 device you lose another. Losing 1 is good.

It's hard. Keep the faith and keep moving forward.