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Living with a trach (tracheostomy), need advice.

Head & Neck Cancer | Last Active: Apr 7, 2023 | Replies (42)

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@neetneet

Greetings Sue: Thank you for your response. I am looking at all angles as to my next steps. When you say with additional home care, what did that consist of and how did you know what to do or who to bring in. I have contacted Mayo and John Hopkins thanks to the information that has been supplied through the post. Presently where he is he is getting infections--too many secretions sitting in the outer cup of the TRACH we are working with the staff to get more cleaning of that area--not suctioning because he can cough up and swallow-but it gets thick and sits in that outer cup and then runs down on him. I need to set my home up in case he does need to come home. I want to be prepared in case the Trach is not capped at this location they are looking to send him to next step locations too far away and I will not be able to get there to see him. I go daily and stay from 10:00am to 5:00pm each day. I know I will need a local ENT doctor -- I am looking into that now. Thank you for the information you supplied.

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Replies to "Greetings Sue: Thank you for your response. I am looking at all angles as to my..."

You sound very organized and prepared, but all of it is stressful for you. This was 20 years ago when my Dad fought oral SCC and finally passed away. My husband was a hospital Respiratory Therapist at the time, so he taught all family members how to suction, as well as the home care nurses/aids that were there at night. Family covered daytime hours. He went on to have a home health care business where he employed RTs to do home visits for ventilator and trach patients. Talk to local hospital social workers about discharge into home care as there will be local agencies who provide what is needed for home visits....nurse visits, PT, OT, even home doctor visits. Medicare usually covers this care as long as patient is making progress, but it varies state to state. And my personal opinion is that frequent superficial suctioning would keep the secretions from building up around the cup, as well as very regular cleaning. I hope you are there to speak with the respiratory therapists about his situation, as they will likely have the most experience and best suggestions. Best of luck to you both.