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Extreme pain in my feet. Neuropathy

Neuropathy | Last Active: Apr 29, 2023 | Replies (51)

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@bjk3

Hi, Jim ~ first of all, I'm so sorry you have had so much pain. Your story could be mine, up until your 2022 notes. I started having foot issues like you described also, in about 2008, but at about age 61. It accelerated in 2019 and since May of this year has become unbearable in my feet and almost so in my hands, without two to three pain medications taken 3 or more times daily plus weekly physical therapy. You didn't mention getting a maddeningly itching sensation deep in your feet but that has been my experience off and on for many years, especially in the heel area. I would describe the pain in my feet as having walked about a quarter mile in stilettos on super-heated concrete, then taking my shoes off and stepping into ice water. Like you, my foot pain would start in the evenings, actually around 10 p.m. and for awhile it would subside around 3 or 4:00 a.m. This year, before medication and P.T., I was literally screaming, walking around the house in the middle of the night. Fortunately it was winter and the windows were all closed - also I live alone in my own home. I guess what has baffled me is that I have tried to describe this to several doctors and none of them gave me a definitive diagnosis until an EMG was ordered in December of 2021 in advance of back surgery in January of 2022. Exactly a year ago I fell and fractured my femur at the ball joint with the hip and after that, the neuropathy kind of exploded. My foot pain is now under better control than what it is in my hands, but the thing I struggle with all the time is imbalance in walking. We all seem to have very unique journeys with this. I am so thankful for this website where we can learn from each others' experiences. God's blessings, Jim!

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Replies to "Hi, Jim ~ first of all, I'm so sorry you have had so much pain. Your..."

Wow bjk3, that sounds just awful. My heart goes out to you. Most of the pain my feet and legs is fleeting and may keep me from going to sleep, but won't wake me up. The one exception is sometimes I get the most horrific pain in my 4th toe while sleeping. It just feels like it's in a vice. It wakes me and won't stop until I put pressure on it. The pressure initially makes it twice as painful, but then the pain starts to subside and will be gone in a couple minutes. It's not a cramp. I'm not exactly sure what is happening. I wouldn't want my whole foot to feel like that. Glad yours has improved some.