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Benign or Malignant IPMN? What to do next?

Pancreatic Cancer | Last Active: Apr 8, 2023 | Replies (79)

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@ken240

It's a bit of a long story, but I had been losing weight without trying in 2020, and I was wondering what was going on. So, I I had an ultrasound performed that actually missed the IPMN on the pancreas, but picked up minor spots on the liver. It was suggested then at that time to have an MRI to take a closer look at the liver. Ironically, the MRI (in 2021) said the liver was fine, but the pancreas had a cyst toward the tail. An EUS determined that the cyst was a benign IPMN. It was decided to surveil for a year, then another MRI. The second MRI showed a little growth (1 mm), the main duct showed marked dilation. I had the distal pancreatectomy and splenectomy in July 2022. An adenocarcinoma was found in the resected portion of the pancreas, but no spread, so was stage 1b at that point and started chemo a month later. Long story that isn't over yet. I hope the info is helpful, but everyone has a different story.

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Replies to "It's a bit of a long story, but I had been losing weight without trying in..."

Thank you for your quick response! I find this all so complicated, why one test misses something, picks up another, etc. And that most of us are non-medical people. We really have to be our own advocates, and I am grateful for this site and everyone's experiences. I hope to hear about your progress and that you have a good outcome. Thank you again! Bev

Thank you for sharing. Makes me feel hopeless and right now I feel desperate for hope.