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Ways to control hypoglycemia caused by insulinoma in pancreas?
Neuroendocrine Tumors (NETs) | Last Active: Jan 5 6:02am | Replies (42)Comment receiving replies
I feel for you with the difficult to control blood sugars. For a time I was not on any medication for hypoglycemia control due to anaphylactic and allergic reactions to sandostatin, lanreotide and everolimus. My hypoglycemia progressed to a very disruptive level. At Mayo they did an embolization in the region of the pancreatic insulinoma but the reduction in hypoglycemia was short lived due to the vascularity of the pancreas. Finally, I did a desensitization to the octreotide and that is helping the hypoglycemia a great deal. I still have breakthrough episodes but they are not disruptive. Hoping the PET scan brings you some answers. Best wishes 🙂
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Thank you. I guess I'm frustrated. When mentioning desensitization or anything about hypoglycemia my oncologist was like your endocrinologist is the expert at that, which I understand, but I don't see her for another month, this is the most pressing issue to me. I dont even have time to deal with cancer part, because the hypoglycemia is making me so unstable. I real mention the desensitization. What does that involve if you don't mind me asking. I greatly truly appreciate your time and effort in answering. Thank you,will pray your treatment and condition improves.