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Looking to connect with people who have non-diabetic neuropathy

Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)
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@jeffo22

Hello, I have had non diabetes peripheral neuropathy for ten years. It gets worse each year. Painful spikes in my feet toes and calf’s. Extreme itching top of my feet, ankles. Very few treatments work. On pregabalin 150 milligrams twice daily, fluocinine steroid cream, my understanding is that it gets worse and nothing to reverse damage. Avoid sugar & white flour.

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Replies to "Hello, I have had non diabetes peripheral neuropathy for ten years. It gets worse each year...."
John, Volunteer Mentor | @johnbishop | Apr 6, 2023

Welcome @jeffo22, Sorry to hear your neuropathy is getting worse. The Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments that you might find helpful here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

Have you tried any complementary or alternative treatments?

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louise@lou | @suzed | Apr 8, 2023

You've had it for ten years? Didn't the doctor find the underlying cause in the beginning?
Doesn't sound very encouraging for the rest of us. I have physical therapy, and also will check about electrical nerve stimulation. Also walking three days a week will increase blood flow.
I'm not giving up yet.

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