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Non-diabetic lumbosacral radiculoplexus neuropathy

Neuropathy | Last Active: Sep 4, 2023 | Replies (24)

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@stevek1963

As an update, it’s now past one year since my symptoms started. I have been tested for so many different things including ALS, MS, cancer, Lyme disease, HIV and on and on. No cause was found other than an autoimmune disorder. I had COVID a year before and also had the Pfizer vaccine. I suspect that is what caused it but no way to prove it. My last treatment was 12 weeks of steroid infusions that started in October. I have also completed a course of physical therapy. I also go to the gym on a regular basis to strengthen my legs.
I have went from walking with a walker or two canes to now walking on my own. I do use a leg brace when working outside in the yard or situations when I am walking a far distance.
I still am mostly numb from my knee to my foot on my left leg. I take gabapentin and nortryptiline for pain.
It’s been a LONG journey but keep pushing to get my full mobility back. My doctor said it will be a year or two till I get everything back or most of what I had. DON’T GIVE UP! Keep pushing to get better. It’s just a long slow process.

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Replies to "As an update, it’s now past one year since my symptoms started. I have been tested..."

My mother has recently been diagnosed with this. Was just wondering how you are progressing now? And has anything showed more success with you rehab? And do you have any other advice you can share? As being so rare we are struggling to find much info.