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DiscussionNew DIPNECH diagnosis, need advice on doctors
Neuroendocrine Tumors (NETs) | Last Active: 21 hours ago | Replies (36)Comment receiving replies
Replies to "I am currently having SBRT to radiate 2 carcinoid lung tumors that are 1.5 cm. They..."
Hi @pattirushing It's a little bit hard for me to single out all the octreotide side effects because I started on two breast cancer meds 2 months before I started the octreotide and they cause a slew of side effects. Still on them. I've been on octreotide for 2 years now and from what I remember the side effects added were: it increased my fatigue, caused additional hair thinning, lowered my heart rate/blood pressure even more (too low) and it caused me to become diabetic. My endocrinologist said it can do strange things to blood sugar. My blood sugar overreacts to everything I eat. I shoots way up and comes down fast so back to normal within two hours. Having said that, my body overreacts to pretty much all meds so hopefully you will have fewer issues. I will not give up the octreotide though because I had life altering symptoms from NETs/DIPNECH that it has controlled very well. Hopefully, it has also slowed down any tumor growth, but the tumors were slow growing from the start. Best of luck to you on your treatment. Do you have any side effects from SBRT?
The symptoms my mom experiences is shortness of breath, some chest pain when walking far and coughing fits.