Thanks for the suggestions for a travel kit; I will be putting one together as well.

Re; sterilizing - I bought one of those collapsible boiling pots after reading about it here or on a NTM facebook group. They are pretty compact and boil equipment in much the same way that a regular pot does. This one has sort of a silicone (food grade) insert that keeps the everything off the bottom of the pot. I have tried it at home and it seems to work well. I have microwaveable bags but they have time limits of a few minutes and I’m guessing that is enough for baby bottle parts but not sure about mac - I plan to take them as a backup though.

I was also concerned about water sources. I bought a Lifestraw gravity water filter system, which advertises that it filters water in the same way as the pitcher and water bottle do. It is lightweight and easy to pack and has a bladder type container that holds 3 litres of water when filled.

Before I was diagnosed with Mac, my husband and I backpacked and walked on Caminos where we carry everything in our backpacks for 6+ weeks. Our trip this spring is partly an experiment to see what I need to take and how well it all works, how to pack lightly, etc. to avoid compromising airway clearance and stay stable while we travel.