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Ways to control hypoglycemia caused by insulinoma in pancreas?

Neuroendocrine Tumors (NETs) | Last Active: Jan 5 6:02am | Replies (42)
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@pontiac

I was on everolimus, but drs felt it was not aggressive enough. Have been put on capecitabine and telmidar. I'm fearful pancreas and liver have progressed. My glucose levels are harder and harder to just keep out of 50s. Food now makes it drop, where before thar wasn't case. Oncologist has advised to hang in there till we get petscan on Monday back. Appreciate everyone's support and help. My low blood sugar has really taken toll on quality of life, hinders me doing anything.

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Replies to "I was on everolimus, but drs felt it was not aggressive enough. Have been put on..."
ahtaylor | @ahtaylor | Apr 6, 2023

I feel for you with the difficult to control blood sugars. For a time I was not on any medication for hypoglycemia control due to anaphylactic and allergic reactions to sandostatin, lanreotide and everolimus. My hypoglycemia progressed to a very disruptive level. At Mayo they did an embolization in the region of the pancreatic insulinoma but the reduction in hypoglycemia was short lived due to the vascularity of the pancreas. Finally, I did a desensitization to the octreotide and that is helping the hypoglycemia a great deal. I still have breakthrough episodes but they are not disruptive. Hoping the PET scan brings you some answers. Best wishes 🙂

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