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Anyone have Primary Aldosteronism (Conn syndrome)?

Diabetes & Endocrine System | Last Active: Nov 29, 2023 | Replies (20)
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@florentina99

Hi Martin.
An interesting journey to your diagnosis.
How long did it take to be diagnosed with P.A .?
What type of scan do you have to check adrenal tumour progress?
Is there a genetic link?
My late mother had high BP and towards the end of her life low potassium levels.
She told me that kidney problems affected her parents too, I often wonder if this was a mis diagnosed adrenal condition?
Best wishes.

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Replies to "Hi Martin. An interesting journey to your diagnosis. How long did it take to be diagnosed..."
Martin Jensen, Volunteer Mentor | @predictable | Apr 5, 2023

Hi, @florentina99. My adrenal tumor was uncovered in 2008 but the diagnosis of PA was confirmed last year. The tumor was seen on both MRI and CT screens a half dozen times over those 14 years, usually in connection with my epithelial bladder cancer. My genetic diagnoses focused on the possibility of breast cancer but not on my adrenal tumor. My nephrologist diagnosed my hypokalemia as the result of Liddle Syndrome in which the kidneys sloughed off potassium (and distracted us from the possibility of PA caused by the adrenal tumor). Sounds like your mother's hypokalemia might have been a condition independent of her adrenal glands as it often is. I hope Eplerenone will resolve your HTN, although I can't yet say it has fixed mine. Martin

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