BINGO! Everything you said here resonates with me! I had mono 44 years ago. I absolutely have had to be my own advocate. I am waiting for my NP to get me in with an infectious disease doc to prescribe me Valtrex. She won't give me anything...feels uncomfortable and doesn't know enough about it. I am the one that asked for all the EBV antibody tests which were sky high 3 weeks ago. Not positive for current Mono though. Meanwhile I have found more help on here from reading other's stories and talking to friends/family with ME/CFS and chronic EBV diagnoses.

I believe my EBV was reactivated last March 2022 when I got Covid when I was under a lot of stress. (I think stress had a lot to do with it) My symptoms seem to be mild compared to many of these stories I am hearing! I had PEM (post-exertional malaise) and dizziness after exercise and just general fatigue all the time. While waiting to get into a specialist and ask for Valtex, I have started L-lysine (and some other stuff) and that seems to be making a world of difference in my fatigue in just a week! And maybe it's just time? No one knows.

Thanks for sharing your experience and insight.