Good evening @charlie807, Welcome to Connect. It appears that you are coming to this group with lots of experiences to share. And that's what we try to do well here........share! You have a great start and I am anxious to learn more about your condition.
However, right now, the message at the top of my list for you is about MFR, myofascial release therapy. There is simply no way I could hold on to exist without my MFR sessions every week. I was diagnosed with small fiber neuropathy (SFN) about 9 or 10 years ago. The journey can be a bit rugged. I will share a Connect link with you as an introduction. And by the way.....did @johnbishop tell you why he doesn't use MFR. That is because he has no pain with his form of SFN (small fiber neuropathy).
@jenniferhunter will undoubtedly be looking to greet you. You can surprise her by having already visited her page in Connect about MFR. Since it was posted, a lot of folks have added to her comments.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
When you say that your foot pain is off the charts....I actually know what you mean. In addition to the pain, the bottoms of my feet feel like leather. This started with a few toes on one foot. And, eventually the other foot. Now it seems like the pain in each foot is in a race to get to my knee. Actually, at this point, I have to have the MFR therapists work on my feet twice a week just so I can drive myself to therapy.
Please let me have some feedback after you have had a chance to absorb our Connect welcomes.
May you be free of suffering and the causes of suffering.
Chris
I'm going to ask my pain doctors about MFR is that correct. I keep going and keep trying all kinds of stuff.